Cape Organization for
Rights of the Disabled
News Update
July 31, 2008

 

 

CONTENTS

CORD Holds Assistive Technology Fair Recreation
CORD Hosts Guardianship Workshop CORD Needs You!
Upcoming Events CAM Training
CPR Training for PCA's Next CORD General Meeting and Board of Directors Elections

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CORD Holds Assistive Technology Fair


On May 23 more than 20 people attended CORD’s Assistive Technology Fair to check out a hands-on display of assistive daily living devices, computer equipment, adaptive telephones, communication devices, technology for people with hearing loss and much more. West Gate Home Health Care, Easter Seals, Hartling Communications and Dynavox were on hand to show their devices and Ride Away brought a new modified van. Presentations on how to pay for the technology were given by CORD and West Gate Home Care. Contact CORD for more information on assistive technology and funding sources.

Photo above: CORD advocate Brian Ladley demonstrates equipment for people who are deaf or hard of hearing.

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CORD Hosts Guardianship Workshop

On April 15 CORD hosted a workshop entitled “The Guardianship Process.” Over 20 family members and professionals attended the workshop which was presented by Arthur B. Crooks, Jr., attorney at law. The workshop provided an overview of how parents obtain guardianship of their child with developmental disabilities if the child is deemed unable to make major life decisions independently. In Massachusetts, guardianship is an option at age 18, which is the age of majority. The topics discussed included the guardianship petition, the clinical team report, conservatorship, “Roger’s” guardianship and estate planning.
If you would like more information on the age of majority, the guardianship process, or less restrictive options to guardianship, please call Polly Sherman, CORD’s Transition to Adulthood Program (TAP) advocate at 1-800-541-0282 or (508)775-8300 ext. 22 (both numbers V/TTY).

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Upcoming Events:

  • Assistive Technology Fair - Wednesday, 8/20/08, 1-3 p.m., Gus Canty Recreation Center in Falmouth
  • CORD General Membership Meeting with Board Election (see back page of newsletter for more information) - Saturday, 9/13/08, 11:00-1:00, at CORD
CORD attempts to maintain a scent-free environment that is safe and comfortable for all. We request that you refrain from wearing perfume, cologne, and other scented products to all CORD events.

 

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CPR Training for PCA’s

The Personal Care Attendant Quality Home Care Workforce Council has secured funding to provide full scholarships to all working PCA’s who are interested in CPR training. Each training session is three hours and participants will receive a Red Cross certificate upon completion. Currently, the two free courses are:

Holyoke Community College, August 20
Roxbury Community College, August 27

Additional training will be offered at community college sites throughout the state. Check www.mass.gov/masshealth/pcacouncil for more information.

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Recreation

Summertime and the living is easy. Sort of. When school lets out many families send their kids off to summer camp or pack up the minivan and head for the hills. For families of children with disabilities these activities may require a little extra planning.

Summer camps and recreation programs are available for kids with special needs, but research is often required to locate appropriate ones and wait lists are not uncommon. One place to start a camp search is The Federation of Children with Special Needs, which publishes an annual Summer Fun Directory (www.fcsn.org). Previously free, the directory now costs $5-$10 (depending on delivery method) and provides information on over 100 summer camps and programs. Another helpful resource is Easter Seals, which runs its own network of day and overnight camps throughout New England (www.ma.easterseals.com). Massachusetts Family Ties (www.massfamilyties.org) offers information about recreation opportunities as part of its free Resource Directory.

Information about summer programs can also be found via groups that serve kids with specific disabilities. For example, local chapters of the Association of Retarded Citizens (www.thearc.org) often maintain lists of programs in their areas. Some organizations, like the Carroll Center for the Blind, sponsor recreation programs. Activity centers, such as YMCAs and Boys and Girls Clubs, may also offer summer recreation for kids with disabilities, including Special Olympics classes and Challenger Division Little League. Costs for camps and recreation programs vary widely, but many offer scholarships and other support to insure families can participate regardless of income.

Massachusetts offers a bounty of outdoor activities in the summer, from beaches to biking to boating. Many families of kids with special needs make creative use of standard recreation equipment or choose from a growing range of adaptive sports equipment to make their favorite amusements fully accessible. For example, wearable child locator devices designed for the mainstream parent market have been used successfully by parents of kids with autism and other cognitive disabilities to insure that they don’t wander at beaches or other outdoor locations. For biking with kids who can’t ride independently, some families turn to widely available bike trailers and trail-a-bikes, while others find appropriate adaptive bikes through sites like www.bike-on.com.

If you’d like to try out activities or equipment before striking out on your own, there are several organizations in and around Massachusetts devoted to connecting people of all abilities with the great outdoors. The Massachusetts Department of Conservation and Recreation’s Universal Access Program (UAP) is a great starting point (www.mass.gov/dcr). The UAP offers information about accessible DCR facilities, runs accessible recreation programs (boating, cycling, hiking and more) and provides adaptive equipment at parks and beaches across the state. Each summer they publish a brochure detailing the offerings at all DCR locations.

Several programs contract with the UAP to run recreation programs in Massachusetts. All Out Adventures (www.alloutadventures.org) offers low or no cost programs, along with adaptive equipment, for activities including letterboxing/geo-caching, kayaking, canoeing and cycling. Also associated with UAP is Community Boating, which provides accessible sailing lessons throughout the summer near Boston. Programs usually welcome people of all abilities, enabling families to participate together.

There are also independent non-profit organizations that offer outdoor recreation opportunities to people with disabilities. Outdoor Explorations (www.outdoorexplorations.org) programs single day and overnight trips for people of all abilities ages eight and up. Costs vary by trip, but PCAs are included for free. Northeast Passage (www.nepassage.org), affiliated with the University of New Hampshire’s College of Health and Human Services, is another option. And Disabled Sports USA (www.dsusa.org) runs an adaptive equipment rental program that offers daily, weekly, and bi-weekly rentals of adaptive cycles, beach wheelchairs, trailriders, water skis, portable ramps, and more. Costs are roughly $55/week. In addition, it runs outdoor recreation programs that have hosted people of all ages.

Finally, what summer is complete without at least one trip to an amusement park? Six Flags New England offers Handicap and MVP passes for families of kids with special needs. Available through its Guest Relations kiosk near the main gate, the passes let users enter rides via exit ramps to avoid long lines that may be prohibitive for some kids. The Handicap pass covers up to four people and specifies the maximum amount of time they will have to wait to get on a ride. The MVP pass can accommodate a larger group (within reason), and guarantees the shortest wait time possible. Guest Relations also offers a pamphlet listing accessible rides, handicap attractions, and height requirements for each ride.

While this list of summer recreation options is far from comprehensive, hopefully it provides your family with a few resources to enjoy your favorite outdoor pastimes and make your summer living a little easier.

Article by Meryl Perlson, Disability Issues, Vol. 28, No. 2, Summer 2008

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CORD Needs You!

CORD invites you to become a dues-paying member. For over 20 years, CORD has been a leader in battles for fair housing, the ADA, communication access, expanded bus service for the Cape, accessible ferries, affordable health care, attendant services, and many other concerns that enhance independent living.

If you cannot pay the entire amount, you may pay a lesser amount of dues as indicated below. Thank you.

____ Yes, I want to pay my annual $20 dues

____ Yes, I want to make an additional donation

____ I would like to become a CORD member and this is what I am able to give $_______.

Name: _____________________________________________________________

Address: ___________________________________________________________

Send to CORD, 1019 Iyannough Road #4, Hyannis, MA 02601

*CORD cannot process online or credit card payments

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Community Access Monitor (CAM) Training

A two-day training session on increasing accessibility in your community

Presented by the Massachusetts Office on Disability

The Community Access Monitor (CAM) Training is designed for both the individual that seeks to advocate for increased access in his/her community as well as for the individual that wants to better understand his/her obligations to provide access to people with disabilities. This training is co-sponsored by: CORD, the Orleans Commission on Disabilities, the Harwich Disability Rights Committee, and DBTAC: New England ADA Center. CORD is pleased to partner with these local community resources to provide this valuable training.

Training topics will include:

  • Regulations of the Massachusetts Architectural Access Board
  • ADA Standards for Accessible Design
  • History of Disability Rights
  • General Overview of ADA
  • New Construction/Alterations of Existing Facilities
  • Programmatic Access Requirements
  • Definition of Readily Achievable Barrier Removal
  • Effective Communication
  • How to Survey a Facility
  • Examples of Good and Bad Accessibility
  • How to Advocate for Access
  • Rights and Responsibilities of a Community Access Monitor

The training concludes with participants performing a basic site survey.

DATES: Wed., 9/24/08 and Thurs., 9/25/08
TIME: 9:00-4:00
PLACE: Community Center, 100 Oak Street, Harwich, MA 02645
COST: $15 for Consumers *
$85 for Professionals **
CONTACT:

Jacqueline Higgins, Massachusetts Office on Disability

(617) 727-7440 (V/TT) or 1-800-322-2020 (V/TTY)

 

* A limited number of scholarships are available

** Continuing education credits are available for Building Inspectors

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Next CORD General Membership Meeting
and Board Elections

The next meeting of the Cape Organization for Rights of the Disabled (CORD) will be Saturday, September 13, 11:00-1:00, at the CORD office at 1019 Iyannough Road (Rte. 132) in Hyannis. The agenda will include updates from CORD’s TAP, DHHILS, and IL programs; legislative updates, and an election for CORD’s board of directors.

The board of directors shall consist of 11 persons; six will be elected directly by the membership and five will be approved by a majority of the membership after recommendation by a nominating committee established by the board. Those eligible to stand for direct election are members of the organization who have paid their dues at least six months prior to the election. Those eligible to be chosen by the nominating committee must have met criteria established by the board.

Candidates for the board of directors may nominate themselves or be nominated by one of the general membership. Those names received one week prior to the election will appear on the printed ballot. Write-in candidates will be accepted on the day of the election.

The current nominees for CORD’s board are:

Peter Allard Loni Monat Barry Sumner
Robert Blank Allison Rice Laurie Sylvia
Frances Buehler Rona Robinson Keith Zibrat
Paula George Carol Schafer  
Richard Lowe Margaret Sorensen  

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CORD Board of Directors

Carol Schafer, Chairperson
Frances Buehler, Vice Chairperson
Paula George, Secretary
Robert Blank, Treasurer
Peter Allard
Laurel Labdon
Allison Rice
Margaret Sorensen
Barry Sumner
Laurie Sylvia
Keith Zibrat

 

CORD Staff

Coreen Brinckerhoff, Director
Cathy Taylor, Assistant Director
Donna Verrettte, Office Manager
Brenda Thompson, IL Lead Advocate
Jocelyn French, IL-VR Advocate

Polly Sherman, TAP Advocate
Kristen Jung, IL/Community First Advocate
Brian Ladley, DHHILS Advocate/Outreach
Susan Childs, IL Advocate
Vicki Trainor, IL Program Assistant
Elaine (Penne) Dupuis, Receptionist/Clerical Assistant
Nanette Jerige, Receptionist/Clerical Assistant

Cape Organization for Rights of the Disabled
1019 Iyannough Road #4, Hyannis, MA 02601
(508) 775-8300/1-800-541-0282 (both #'s V/TTY)
(508) 775-7022 Fax
www.cilcapecod.org

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